Thursday, March 25, 2010

Can you solve the riddle??

If any of you are my friends on facebook then I'm sure you are wondering what is going on with Ryan. Well...nobody knows. She has, yet again, brought on another mystery. Only this time, it's a pretty big one. In the last post, I mentioned that Ryan had a sinus infection, fever of 103 and pink eye. Well, everything went away, except the fevers. For the last 3 weeks....yes 3!!!! Ryan has had fevers that have come and gone, but mostly stayed with her. This past Saturday, we alternated Tylenol and Motrin every 4 hours and then we went to sleep in my bed around 9 pm. Jay was at the neighbors house watching the UK game and when he came home, he came into our room and felt Ryan's head. She was ON FIRE!!! He woke me up and was freaking out. Josh was here and was already sleeping. I grabbed the thermometer and took her temp under her arm and then added a degree. 105.6 was the result. WHAT?!?!? THIS IS NOT happening!!!! Jay stayed with Josh because we didn't want him to be freaking out and I got Ryan in the car and HIGH TAILED it up to Children's Hospital. On the way, I called the ped that was on call and she said to make sure they get a urine sample to check for a UTI. She also called the ER to let them know we were coming. We always get right in with her because of the heart issues. The nurse in the ER triage checked her temp again and it was the same. She gave her a dose of motrin and within an hour, it had dropped to 103. She was M-I-S-E-R-A-B-L-E!!!! The nurses came in and said they needed to use a cathetor to get a clean urine sample for the test. I left the room!!! I've been there with her while she has had a cathetor at about 6 months old and I can't watch it. Anyways.....the test came back negative. Her urine was CLEAN. So, what is it? NOBODY KNOWS!!! We finally left the hospital at about 4:30 am. The doctor sent us home and said he thinks she caught some sort of virus and said to alternate tylenol and motrin again all day Sunday. He said "if she is still running a fever AT ALL on Monday, follow up with her pediatrician." OK.....will do.
On to Monday: Ryan woke up feeling pretty good. She hadn't had a fever since about 8 pm Sunday night, so I took her to school. 1 pm hit and I got the call. They had given her tylenol at about noon and the temp was still at 103. I couldn't leave work, so my mom went and picked her up and brought her back to our house. I left work at 4 and made an appt with the peds office for 6:45 pm. When we got there, the nurse practitioner sent us upstairs (into the hospital) to get a chest x-ray and blood work in the lab. I had talked to Ryan's cardiologist, Dr. Hor on the way and he sent an order for the labs. He wanted to know if there was bacteria in her blood for fear that it would get into her heart. We finally got home at about 9:15 pm. They said to follow up again on Thursday.
On to today: Jay took Ryan BACK to the peds office this morning. All of the blood work was fine except for her white blood count. The normal count is between 10 and 15 thousand. Hers was at 22,000. Hmmm.....all that means is that there is an infection SOMEWHERE in her body. WHERE?!?!? NOBODY KNOWS!!!! The x-ray was clean as well. Nothing in the lungs. Back to square one. She prescribed an anti-biotic for Ryan to take for 10 days JUST IN CASE!!! And, we are getting some prescription ear drops filled because the inside of her ear was just a little red. So, she will get the drops a couple times a day JUST IN CASE!!! Ryan's next cardiology appointment was not until June it is next Wednesday. She will be getting her usual sedated echocardiogram. We didn't schedule an appointment to see Dr. Hor but he always stops by to say hello. He will call us later in the day with the results. His fear is that the high fevers may be doing more damage to her heart, or any other organ for that matter.
During the past 3 weeks, Ryan's energy level has been NON-EXISTENT. She doesn't want to do ANYTHING!!! I was pleasantly surprised yesterday that she even wanted to step foot outside. She has been laying on the couch basically for 3 weeks, not eating much but still staying hydrated. After the meds that she takes are over, if she still is having problems, we are going to follow up with the peds AGAIN! Can you solve the riddle? Do you know what could be wrong? Because we don't have a clue!!! All I know, is I feel SO BAD for her. I hate that feeling of not being able to make her better. Hopefully these meds will work some sort of magic and take care of whatever this is. Please keep Ryan in your prayers. I will keep everyone posted if anything else happens. If anybody has ANY idea's as to what could be wrong with her, please let me know. If you do not want to leave it as a comment on here for any reason, please email me at Any and all idea's or advice would be greatly appreciated. I'm sorry that I really have nothing posotive to write about right now, but I'm mentally and physically exhausted. I will post again sometime soon and will have to play catch up with all of your blogs again this weekend!!!! THANKS FOR ALL OF THE LOVE AND SUPPORT!!!!!

Tuesday, March 16, 2010

Where do I begin??

I'm not really sure where to begin with this post. It's been a while. Well, my cousin tied the knot. You know? Kate, the one I always mention in my posts. Her and Justin got married this past Saturday and the ceremony was AMAZING!!! Ryan was supposed to be the flower girl, but she didn't make it down the isle. I'll get to that after the pics!!

dancing with my dad

she was EXHAUSTED!!!!

Josh and Ryan shaking it on the dance floor :)
she was happy after cake
Friday night at the rehearsal

My beautiful big girl!!!
Ok, so onto Ryan and her flower girl problems. She had her pretty white dress on and we thought things would be fine. However, all last week Ryan was VERY SICK!!! It all started last Tuesday when her fever was 103. Then, she woke up Wednesday morning with green mucus POURING out of her nose. BLAH!!! She went to the doc that day and the peds said they thought it was a virus and not an infection.....YEAH RIGHT!!! So, they didn't give her any meds. Thursday morning she woke up with both of her eyes GLUED shut with nasty eye slime and crusty stuff. Have you guessed what it is yet? If you said PINK are right on the money. I have no idea where she got it because NONE of the kids at daycare have it. So, I called the peds office and they called her in some eye drops. Needless to say, last week, she was just plain falling apart. She is doing better now, although she still doesn't want to eat much and her sleep is MESSED UP!! She wants to sleep in my bed like she did when she napped while being sick. NOT GOING TO HAPPEN. I am trying to get her back into her bed and her old routine of doing great at bed time with no crying. Hopefully it happens soon. Ryan had a VERY hard day Saturday. She cried almost all day and was only in a few of the professional pictures. Her favorite part was riding in the "BIG TRUCK" which was the Excursion Limo. As you can see from the pics above, she ate some cake and then cheered up, but it didn't last long. During the ceremony, she slept on my mom's lap. :(

Kate and Justin Lang!!!

She has been better now that all the stress is over with, but her cough still sounds pretty yucky. Since she cannot cough the mucus up, she has had some random times of vomiting but other than that, I know she will be just fine. Since she was out of school so much last week though, she had it rough yesterday morning when I dropped her off. She was VERY upset and cried for some time but she did get better as the day went on. She even made a little something....

like the hat??? She got to paint it herself!!!
We are planning a trip next month to Georgia to see my brother graduate from Army Basic Training. I'm so excited to see him and to get away for a few days. This will be Ryan's first BIG trip. She has been to Lake Cumberland (a few hours away) and to Gatlinburg, TN (4 hours away) This drive will be 9 hours.....yes......9!!!!!!! We are hoping to leave in the middle of the night so she can sleep most of the way. Pray that this goes well.....I can't even imagine the way this trip will go if she doesn't sleep most of the time in the car.
I don't really have much else to update on now, I've been so busy with work and everything that I feel like I dont have time for anything...and I want to spend all my free time with Ryan.
I hope everyone is doing well and I am hoping to have time this weekend to catch up on what you have all been up to!!! Below is my new favorite picture!!! I wish Ryan's smile was a little better but I still think it's great!!!

Thursday, March 4, 2010

School is now in session....

Yesteryday was Ryan's first day of school!!! I dropped her off at 7:30 am and when I got to the car I cried!!!! I couldn't help myself. At first she was a little hesitant, and was asking me to hold her. But I didn't give in. She walked into her classroom (for 2 year olds) and starting playing with a toy. I asked her for a goodbye kiss and hug and she gave them both to me. I left and headed for work......after my tear session in the car!!

ready for school

me and Ryan before we left


Jay got up early so he could see her off for her big day. Once I got to work, it was killing me. I just HAD to know how she was doing. So, after only an hour of her being there, I made the first call. She was doing great. She was eating breakfast which included a pancake, a piece of sausage, and some applesauce. She gets graded on everything she does for the day and she got a 90% for eating almost all of her breakfast. They said she was doing great and didn't cry at all!!! I am so proud of her. I called again at lunch time and she was eating. She had chicken nuggets, peas and carrotts, and peaches. She only got a 70% on that. Her nurse asked her "Ryan, don't you want some peas?" Ryan then said "I don't want's gween" (green) YUP....she doesn't eat anything that's green!!

When I went to pick her up, she was happy to see me and gave me a big hug and told me she had animal crackers for a snack. The nurse told me she took almost a 2 hour long nap and didn't have any potty accidents THE WHOLE DAY!!! I picked her up at about 5:20 ( I don't get off work until 5)

My new job is also going great!!! I really like it and I stay so busy that the days go by pretty fast. The only downside to all of this.....I dont get much time with Ryan. We wake up in the morning and get ready and just walk out the door. By the time I get off work and pick her up, we have enough time to come home, cook and eat dinner, give her a bath, get clothes and everything set out for the next day, and then bed. After everything is ready for the next day, we will spend time together. Tonight I read her a couple books that she picked out from her book shelf. I'm just used to being with her ALL DAY LONG. Although I'm not as stressed as I was before (mentally and financially) I still miss her TONS!!! I know it will take time for us to get used to. Jay is even seeing her less than me. Since he doesn't work on Friday's, he is picking Ryan up early from school tomorrow. She will be so excited to see him in the afternoon.

Before I go to bed and prepare for another long day at work tomorrow, please say prayers for BABY V!!!! She is in the hospital right now with fevers and low saturations!!! GET YOUR KNEES DIRTY AND PRAY!!!!